Episode Synopsis "Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 1 - "Intro: Host Stories""

Grief and loss in the Cystinosis community with a Q&A section facilitated by a certified social worker and professor with many years of experience in the Cystinosis community. We also share our perspectives and stories on the current Covid-19 pandemic with two special guests living with Cystinosis.  Produced by : Jana and Sara Healy, Steve Scheudler and Cheryl Simoens Special Guest: Maya Doyle

Listen "Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 1 - "Intro: Host Stories""

More episodes of the podcast Cystinosis Rare: A Journey Into the Unknown

• Cystinosis Rare: A Journey into the Unknown - Episode 5: Parent Panel Discussion
• Cystinosis Rare: A Journey into the Unknow - Episode 4
• Transitioning from Youth to Adult through the medical system: Episode 3 - Part 2
• Transitioning from Youth to Adult through the medical system
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 3 - "Discussion on coping during Covid-19"
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 2 - "Q&A with Maya Doyle"
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 1 - "Intro: Host Stories"
• Cystinosis Rare: A Journey into the Unknown