Cystinosis Rare: A Journey into the Unknown - Episode 5: Parent Panel Discussion

13/12/2020 1h 23min

Listen "Cystinosis Rare: A Journey into the Unknown - Episode 5: Parent Panel Discussion "

Episode Synopsis

Episode 5 of the Cystinosis Rare podcast focuses on parents speaking candidly about their experiences of having children with cystinosis; their journeys, challenges, and  inspiration.

The guests for our parent panel include Jill Morrill, Jonathan Dicks, and Jana Riley-Kraulik with hosts Sara and Jana Healy, Steve Scheudler and Cheryl Simoens.