Episode Synopsis "Cystinosis Rare: A Journey into the Unknown"

Our first episode focuses on positive aspects and inspiring stories of adults living with Cystinosis.  We have two guest appearances, our first guest is William Brink sharing his story on how he was affected by the loss of his brother and later gained the courage to begin weightlifting. Our second guest is Shannon Keizer sharing her journey on shifting her perspective from low mental health and continual health issues to fuel her drive to begin a nursing degree. The hosts of each episode are Jana and Sara Healy, Steve Scheudler and Cheryl Simoens, adults living with Cystinosis.

Listen "Cystinosis Rare: A Journey into the Unknown"

More episodes of the podcast Cystinosis Rare: A Journey Into the Unknown

• Cystinosis Rare: A Journey into the Unknown - Episode 5: Parent Panel Discussion
• Cystinosis Rare: A Journey into the Unknow - Episode 4
• Transitioning from Youth to Adult through the medical system: Episode 3 - Part 2
• Transitioning from Youth to Adult through the medical system
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 3 - "Discussion on coping during Covid-19"
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 2 - "Q&A with Maya Doyle"
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 1 - "Intro: Host Stories"
• Cystinosis Rare: A Journey into the Unknown