Episode Synopsis "Transitioning from Youth to Adult through the medical system: Episode 3 - Part 2"

This episode focus's on living within Cystinosis transitioning out of youth and into adult care.  Topics include medication routine and side effects, support systems and taking on a more independent role as aging occurs. This episode shed's light on a very real conversation about daily life and aging in the rare disease community.  We have four special guests living with cystinosis along with your hosts Jana and Sara Healy, Cheryl Simoens and Steve Scheudler.

Listen "Transitioning from Youth to Adult through the medical system: Episode 3 - Part 2"

More episodes of the podcast Cystinosis Rare: A Journey Into the Unknown

• Cystinosis Rare: A Journey into the Unknown - Episode 5: Parent Panel Discussion
• Cystinosis Rare: A Journey into the Unknow - Episode 4
• Transitioning from Youth to Adult through the medical system: Episode 3 - Part 2
• Transitioning from Youth to Adult through the medical system
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 3 - "Discussion on coping during Covid-19"
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 2 - "Q&A with Maya Doyle"
• Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 1 - "Intro: Host Stories"
• Cystinosis Rare: A Journey into the Unknown