A podcast for the Cystinosis community and general public, sharing experiences and both educating and supporting the affects of this rare kidney disease. Credits: Steve Scheudler, Jana Healy, Sara Healy, Cheryl Simoens
Latest episodes of the podcast Cystinosis Rare: A Journey Into the Unknown
- Cystinosis Rare: A Journey into the Unknown - Episode 5: Parent Panel Discussion
- Cystinosis Rare: A Journey into the Unknow - Episode 4
- Transitioning from Youth to Adult through the medical system: Episode 3 - Part 2
- Transitioning from Youth to Adult through the medical system
- Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 3 - "Discussion on coping during Covid-19"
- Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 2 - "Q&A with Maya Doyle"
- Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 1 - "Intro: Host Stories"
- Cystinosis Rare: A Journey into the Unknown