Listen "Duchenne through a mother’s eyes: Linda Williams and DMD"
Episode Synopsis
In this conversation, Leanne Watson speaks with Linda Williams, a mother and primary caregiver to her son Harrison, who has Duchenne muscular dystrophy.They discuss the challenges and realities of living with DMD, including the impact on family life, the importance of advocacy, and the need for better accessibility and support systems. Linda shares her journey of navigating the healthcare system, the housing crisis made worse by lack of inclusively designed homes, and the emotional toll of caregiving, while also highlighting the joy and hope that can be found in family and community support.Links to resources. Harrison's pages are: Instagram: @harrison_and_duchenneFacebook: facebook.com/harrisonandduchenneTikTok: @harrisonandduchenne Other links:Carers QLD. https://carersqld.com.auMuscular dystrophy Queensland https://mdqld.org.au Facebook 'Duchenne Australia - Support Group' https://www.facebook.com/groups/820692598018113/
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