Creative and eloquent Tayla Richardson has Congenital Myasthenic Syndrome. A rare neuro muscular disorder that presents quite similarly to many muscular dystrophies and therefore is worth sharing on You, Me & Muscular Dystrophy.Having hundreds of periods of paralysis from her teenage years Tayla shares her unique experiences coping with a new diagnosis, working with the waves of grief, setting boundaries and exploring and honing her creativity.Tayla has an inspirational attitude and great advice to others who may be newly diagnosed or caring for someone in that situation.NOTES AND RESOURCES MDA – Muscular Dystrophy Australia - https://www.mda.org.au A Slight Change Of Plans podcast.    https://www.pushkin.fm/podcasts/a-slight-change-of-plans I Think Therefore I slam Podcast - https://podcasts.apple.com/au/podcast/i-think-therefore-i-slam/id1747139808 The Growing Space.  https://www.thegrowingspace.com.au/ Rare Voices Australia   https://rarevoices.org.au  MORE OF TAYLA HERE ‘Dandelion Bouquet’ Short film: https://www.focusonability.com.au/FOA/films/3771.html ‘Amorphous’ Short film: https://vimeo.com/1078856803Emerging Writer’s Festival Panel: emergingwritersfestival.org.au/event/where-do-you-get-your-ideas/Sample of spoken word Poetry: https://www.youtube.com/shorts/XmC0YtnRb7wRussh Magazine (poetry) as finalist for Literary Showcase: https://www.russh.com/wp-content/uploads/2024/04/The_string_that_goes_unseen__excerpt_.pdfArticle in HireUP: https://hireup.com.au/news/in-the-midst-of-a-pandemic-time-is-precious-for-those/?fbclid=PAZXh0bgNhZW0CMTEAAad6iCIP3gxeHPiEzlcZ4E8ZQtuaqReuDt6fcBZQz_5o1rGFaiRvFKM-Auj3VA_aem_i-pdThP0WQ2w7N2QmEB42g As a guest on podcasts ‘ListenABLE’ with Dylan Alcott and ‘I think Therefore I Slam’. https://www.youtube.com/watch?v=WwnICEj1ObU&feature=youtu.behttps://podcasts.apple.com/au/podcast/patreon-preview-tayla-richardson-ambiguous-loss-unequivocal/id1747139808?i=1000716533890 

Ver todos los episodios