In this episode of 'You, Me and Muscular Dystrophy', host Leanne Watson speaks with Kate Johnson, a mother navigating the challenges of raising a child with Limb Girdle Muscular Dystrophy (LGMD). They discuss the journey of diagnosis, the emotional and practical challenges of parenting a child with a degenerative condition, and the importance of community support. Kate shares insights on family dynamics, sibling relationships, and the need for self-care as a caregiver. The conversation highlights the resilience of children and the hope that can be found in seeing your child happily surrounded by inclusive peers, as well as the importance of advocacy in navigating the healthcare system.  

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