SynGAP10 weekly 10 minute updates on SYNGAP1

SynGAP10 weekly 10 minute updates on SYNGAP1

Por: Syngap Research Fund, 501(c)(3)
Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
182 episodios disponibles

Latest episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1

CURE SYNGAP1 joins biotech investors in CAMP4 Tx’s $100M Raise for ASO Program $CAMP #S10e182 10/09/2025
Why & How Do Patient Advocacy Groups Matter? Party Friday! #SYNGAP1Conf soon! #Elopement #S10e181 08/09/2025
#IEP: Syngapians don’t like the heat 🌡️ #BeaconOfHope #IEC2025 #CitizenHealth #DSC #CFC #S10e180 29/08/2025
GALA is now, #StokedAboutStoke, Go Grann, Our Villages, CHOP/NIH, More on Elopement. #S10e179 22/08/2025
How to talk about #ELOPEMENT in #SYNGAP1 with Schools, Judges & Police Officers. #S10e178 Monday, August 18th, 2025. Week 34. 18/08/2025
Embracing Complexity, Another Pipeline Neuren Pharma, It’s Party Time #S10e177 08/08/2025
Why join the Relutrigine study from Praxis for DEEs with motor seizures? - #S10e176 30/07/2025
Global Overview of SYNGAP1 Natural History Studies - Support the SYNGAP1 #ProMMiS – #S10e175 16/07/2025
CENSUS, SYNGAP1. It is racing to a better future b/c of our families. #S10e174 07/07/2025
TOMORROW 6/21 IS SYNGAP1 AWARENESS DAY #ILOVESOMEONEWITHSYNGAP1 #S10e173 Friday June 20, 2025. Week 25 20/06/2025
CAMP4, JAX and Allen present about ASCGT, JHU Article, CRISPR, Repurposing, 4PB & SRF News #S10e172 18/05/2025
ADULT 🇵🇹 🇫🇷 🇪🇸 🇳🇱 🇬🇧 🇨🇦 caregivers PLEASE complete Andrade Study ASAP.   #S10e171 01/05/2025
#S10e170 - Sprint is tomorrow!  WODC Update.  ASOs are coming… Get ready. 25/04/2025
ProMMiS Data Webinar up! New Board Sprint4SynGAP @ $168K! Catatonia ASO?s Siblings Missense #S10e169 15/04/2025
Time to Lean In FEROCIOUSLY on Clinical Trial Readiness–Frazier CHOP/CHCO will you say Yes? #S10e168 09/04/2025
Global CTR Survey, Two New PRs, Sprint4Syngap Hype & Community Voices - #S10e167 26/03/2025
SYNGAP1 #UnMetNeed bucketed by Medical, Behavior/ID & Impact on Family - #S10e166 18/03/2025
Save Medicaid: A Critical Moment for Our Loved Ones 11/03/2025
Tell me your UnMet Need. CHCO ProMMiS!  Gut Paper with Citizen Health.  Rx Repurposing  - #S10e164 11/03/2025
RDD25 - Federal Funding - Hope vs Despair? Disability is Political. Take it or Advocate? #S10e163 28/02/2025
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