Sunday, September 7, 2025. Week 37.

Why does CURE SYNGAP1 aka SRF matter?  Do PAGS make a difference?
Heck yes.

Empower Families - Support.  Educate.  Activate.  Coordinate.
Use Money Catalytically - Tax advantage.  Pool.  Manage.  Make Catalytic.  Focus.  Manage.
Partner with Science & Medicine - Push forward.  Connect efforts.  Focus on Tx.  Work in Clinic.
Leverage Ecosystem.  Industry.  PAGs.  Superpags (CB, GG, ELF).
Ensure Continuity.  Our kids will outlast us.  Our energy wanes.  Life happens.  Cure SYNGAP1 never stops focusing on the biggest challenge in our lives: SRD.

Because you VOLUNTEER 
Join us: https://curesyngap1.org/volunteer-with-srf/ 
 
Gala video: Look at those faces.https://www.youtube.com/watch?v=d6dCSBq27Gc
 
Friday: Beacon of Hope September 12, 2025 - Boston, MA cureSYNGAP1.org/Beacon25
 
Scramble for SYNGAP October 4, 2025 - Greer, SC cureSYNGAP1.org/Scramble
📺 TV Interview! https://www.wspa.com/your-carolina/scramble-for-syngap-2/amp/
 
Conference is in 88 Days
https://curesyngap1.org/events/conferences/cure-syngap1-conference-2025-hosted-by-srf/

Register (97 done!)

Need to register for the conference? Do that here: cureSYNGAP1.org/Reg25
 

Get a Room (Deadline 11/3 – Will sell out)

Need a hotel room? Use our block here: cureSYNGAP1.org/GATech
 

Get Friday Dinner Tickets we are going to AltaToro https://altatoro.com/ (20 already sold!)

Register here: cureSYNGAP1.org/Din25
 

SHARE BLOOD TO THE SRF BIOBANK
🩸https://curesyngap1.org/blog/fueling-research-syngap1-combinedbrain-biorepository-roadshow

 
#Elopement (See #S10e178 https://www.youtube.com/watch?v=OiRnXxh0wfY)
https://people.com/boy-rescued-from-hersheypark-monorail-is-on-the-autism-spectrum-says-rescuer-11802782
https://www.facebook.com/NationalAutism/posts/pfbid02MqviB8pfYpm8QMw5ASqp9XMQY2MsL7mVcJSfeLmzsHLHBAt9bBDjfuqdg2awXAtsl 
 
3rd Scientific Congress in Spanish Oct 11 virtual 9-1:30 ET, 8-12:30 in Colombia
https://curesyngap1.org/calendar/tercer-congreso-cientifico-syngap1-en-espanol/
Register at cureSYNGAP1.org/Congreso3
 
SOCIAL MATTERS
- 4,306 LinkedIn.  https://www.linkedin.com/company/curesyngap1/ 
- 1,430 YouTube.  https://www.youtube.com/@CureSYNGAP1   
- 11,286 Twitter https://twitter.com/cureSYNGAP1 
- 46k Insta https://www.instagram.com/curesyngap1/ 
 
Join Citizen Health!  Last count we were at 275!
https://www.citizen.health/partners/srf
 
Pubmed is at 42!
https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2025-2025&timeline=expanded&sort=date&sort_order=asc
 
NEWLY DIAGNOSED?
Next New Family Webinar - Tuesday Sept. 9th, 2025, 5 PM Pacific scheduled! https://curesyngap1.org/resources/webinars/webinar-105-syngap-research-fund-quarterly-webinar-new-syngap1-family-orientation/
 
Resources
https://curesyngap1.org/syngap1-resources-for-newly-diagnosed-families
 
Podcasts, give all of these a five star review!
https://cureSYNGAP1.org/SRFApple  
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917 
 
Episode 181 of #Syngap10 #CureSYNGAP1
#Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1 #SynGAP #SynGAProMMiS

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