The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)

Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation
06/03/2018 26 min
The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)

Listen "The Power of Community: How Patient Communities Provide Hope and Help Further Rare Disease Research (Patient Navigation)"

Descargar episodio Ver en sitio original

Episode Synopsis

Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, [email protected] (Music credit: www.bensound.com)

More episodes of the podcast Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation

Genetic Counseling in Rare Diseases 24/02/2024
Jimmy Lin RareShare Podcast 08/08/2023
Clinic for Special Children 07/02/2022
Ethan and Me with Geraldine Renton 26/05/2021
Meet the Rareshare Team 07/12/2020
Don’t Sell Yourself Short: Having a Career after a Rare Disease Diagnosis 22/01/2020
How to Get Answers From Rare Disease Experts: The Rare Genomics Task Force (RGTF) 27/08/2019
3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis 08/06/2019
All About Genomic Sequencing for Rare Disease Patients: A Focus on iHope 19/04/2019
Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research 17/12/2018
© 2003-2025 ZARZA | AHEAD OF OUR TIME
privacy policy
In God we trust In God we trust
PreSales Questions? Click Here
or call our toll-free line at +1-888-5002068 Miami, Florida, USA