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Meet the Rareshare Team

Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation
07/12/2020 29 min
Meet the Rareshare Team

Listen "Meet the Rareshare Team"

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Episode Synopsis

This episode features RareShare itself, and discuss various topics ranging from its goals and how to utilize its networking and informational content. We hope to provide you with a brief, but comprehensive view of the website·s features, the diverse and

More episodes of the podcast Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation

Genetic Counseling in Rare Diseases 24/02/2024
Jimmy Lin RareShare Podcast 08/08/2023
Clinic for Special Children 07/02/2022
Ethan and Me with Geraldine Renton 26/05/2021
Don’t Sell Yourself Short: Having a Career after a Rare Disease Diagnosis 22/01/2020
How to Get Answers From Rare Disease Experts: The Rare Genomics Task Force (RGTF) 27/08/2019
3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis 08/06/2019
All About Genomic Sequencing for Rare Disease Patients: A Focus on iHope 19/04/2019
Growing up With a Rare Disease: An Alagille Syndrome Warrior on Understanding Her Rare Disease and Participating in Research 17/12/2018
Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community 14/08/2018
Ver todos los episodios
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