Listen "3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis"
Episode Synopsis
Hear about rare disease diagnosis, treatment, and quality of life from the perspective of Pulmonary Fibrosis patient Jim Carns, his wife and caregiver Karen Carns, and Dr David Lederer, an expert from the Pulmonary Fibrosis Foundation who is also an Associate Professor at Columbia University. Jim tells us his diagnosis and treatment story, Karen explains what life is like as a caregiver or “care partner,” while Dr Lederer explains the causes of the disease, the treatment options, and upcoming Pulmonary Fibrosis research. Visit RareShare.org to find your rare disease community.
More episodes of the podcast Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation
Genetic Counseling in Rare Diseases
24/02/2024
Jimmy Lin RareShare Podcast
08/08/2023
Clinic for Special Children
07/02/2022
Ethan and Me with Geraldine Renton
26/05/2021
Meet the Rareshare Team
07/12/2020
ZARZA We are Zarza, the prestigious firm behind major projects in information technology.