Care Coordination in Spinal Muscular Atrophy

18/04/2023 14 min Episodio 86
Care Coordination in Spinal Muscular Atrophy

Listen "Care Coordination in Spinal Muscular Atrophy"

Episode Synopsis

In this episode, Dr. Battista and Dr. Parsons discuss the importance of care guidelines and the multidisciplinary team in the treatment of spinal muscular atrophy (SMA). This overview will include:The role each member of the interdisciplinary team plays in the care of SMA including physical therapists, occupational therapists, and speech therapistsThe importance of continued, ongoing therapy in addition to medication therapy to provide the greatest improvement in SMA careHow to manage transitions in care, including the transition from pediatrics to adulthood and how to include the necessary support teamsThe role shared decision-making plays in the treatment of patients with SMAPresenters:Julie Parsons, MDCo-Director, Neuromuscular ClinicHaberfeld Family Endowed Chair in Pediatric Neuromuscular DisordersProfessor of Clinical Pediatrics and NeurologyChildren’s Hospital ColoradoDenver, ColoradoVanessa Battista, DNP, MBA, RN, MS, CPNP-PC, CHPPN, FPCNSenior Director of Nursing, Palliative CarePsychosocial Oncology and Palliative CareDana-Farber Cancer InstituteBoston, MassachusettsSupported by an educational grant from Biogen.Link to full program: https://bit.ly/43Dmo7qLink to CME: Claim credithttps://bit.ly/40gulfX  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

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