RARECAST Episode #298: Readying a Rare Disease Community for the Availability of Treatments

RARECAST Episode #298: Readying a Rare Disease Community for the Availability of Treatments

NNPDF Podcast

01/11/2021 3:00PM

Episode Synopsis "RARECAST Episode #298: Readying a Rare Disease Community for the Availability of Treatments"

NNPDF Executive Director, Joslyn Crowe speaks about how NNPDF is preparing the patient community for the availability of the first therapies for Niemann-Pick Disease, the issues people will need to consider, and how families may think differently about their futures.

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