CDKL5 in Color

Por: Marissa Bishop
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights.

Our goal? To weave a tapestry of vibrant community stories.

Have a CDKL5 story to share? Get in touch!
27 episodios disponibles

Latest episodes of the podcast CDKL5 in Color

Episode 26: Keshia’s Life with Emani (age 16) 18/10/2025
Episode 25: Let's Talk About AAC 04/10/2025
Episode 24: Teresa’s Life with Louise (age 26) 13/09/2025
Episode 23: We’re Back! Summer recap and an opportunity to share your knowledge with us and ASGCT! 06/09/2025
Episode 22: What has been your biggest lesson learned? 30/06/2025
Episode 21: How has this diagnosis changed you? 23/06/2025
Episode 20: What does your family need more of and/or less of in this CDKL5 life? 16/06/2025
Episode 19: What does support look like to you? 09/06/2025
Episode 18: What impact does life with CDKL5 have on your family? 01/06/2025
Episode 17: Ed’s Life With Haley (age 18) 23/05/2025
Episode 16: Let’s Talk About Acceptance 09/05/2025
Episode 15: Renee’s Life with Owen (age 5) 02/05/2025
Episode 14: Carol-Anne’s Life with Amber (age 20) 18/04/2025
Episode 13: So, What Are You Wearing? 04/04/2025
Episode 12: Hey! How Are We Doing?? 28/03/2025
Episode 11: Heather's Life with Ezra (age 3) 14/03/2025
Episode 10: Let's Talk About Being Hospitalized 07/03/2025
Episode 9: Stephanie's Life with Isobel (age 7) 21/02/2025
Episode 8: The Importance of Seizure Action Planning 07/02/2025
Episode 7: Advocacy, Rare Disease Day, & a Giveaway! 01/02/2025
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