Episode 30: Kara’s Life with Bennett (age 9)In this episode you’ll meet Kara and her nine-year-old son, Bennett. Bennett is a middle child and his mom shares about the unique relationships he has with each of his brothers. Kara reflects on how she navigated getting in-home nursing support - spoiler, it was with the help of other disability parents, not professionals (a typical experience in our community) - and how the support is critical to helping her maintain employment as a teacher as well as her sanity when caregiving gets medically challenging. Bennett often requires respiratory interventions and Kara shares how she manages his needs and all the equipment that’s involved with keeping him safe and healthy. If you have a respiratory kiddo with CDKL5, you’ll likely identify with this conversation!Thanks for joining us, Kara!SPECIAL ANNOUNCEMENT! - Biscuit Bandit Dog Treat Fundraiser for the Pod! Purchase by Dec 15! Makes great gifts!SHOW NOTESCheck out our website and sign up for our quarterly newsletter at www.CDKL5inColor.comFollow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube!Email us to be on the show! [email protected] IN THE EPISODE:Parents Helping Parents

Ver todos los episodios