Episode 20: What does your family need more of and/or less of in this CDKL5 life?

16/06/2025 21 min Episodio 20

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Episode Synopsis

Episode 20: What does your family need more of and/or less of in this CDKL5 life?It’s June and that means it’s CDKL5 awareness month! We are doing things a little differently on the podcast this month. We are diving into some emotional topics and sharing insights directly from our peer caregivers.Our children who live with CDKL5 deficiency disorder are so loved, but life with CDKL5 is hard, so join us as we talk about it.We asked: What does your family need more of and/or less of in this CDKL5 life?SHOW NOTESCheck out our website and sign up for our quarterly newsletter at www.CDKL5inColor.comFollow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube!Email us to be on the show! [email protected] IN THE EPISODE:Brené Brown on EmpathyAdvocacy Abby’s Grant Finding Website