On this episode we welcome Renee who lives with her young family in Colorado. She tells us about the special sibling relationship her children have and we learn all about therapy intensives (and discover Owen’s newfound love of horses!). We also hear Renee’s beautifully peaceful perspective on the rare disease journey and how she finds gratitude in Owen’s story - just as it is written. This gentle and sweet mama is easy to listen to, so enjoy.“My love for this boy… and just rising every day to meet him where he’s at and love him for exactly who he is and cherish every day I get with him… how lucky are we that he’s ours?” -ReneeThanks for joining us, Renee!SHOW NOTESCheck out our website and sign up for our quarterly newsletter at www.CDKL5inColor.comFollow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, & YouTube!Email us to be on the show! [email protected] IN THE EPISODE:Book: What is Epilepsy?NAPA Center - DenverNeuroplasticityAAC - Augmentative and Alternative CommunicationUDN - Undiagnosed Disease NetworkMosaicismCorpus CallosotomyHippotherapy

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