Living with rare disease is a journey of challenges and triumphs. Valen and IgA nephropathy (IgAN) patient advocate Malkia White share their personal stories, exploring what makes the rare disease experience unique and the strength that comes from shared experiences. Tune in to hear about the power of connection in the rare disease community. About Your HostValen Keefer – Patient Advocacy Leader, Health Educator, & Strategic Consultant, www.valenkeefer.com Additional Resources#ThatGirlNeedsAKidney, https://facebook.com/thatgirlneedsakidney #ThatGirlNeedsAKidney, https://instagram.com/ThatGirlNeedsAKidneyResources IgA Nephropathy Foundation, https://igan.org/ National Organization for Rare Disorders, https://rarediseases.org/Mental Health America, https://mhanational.org/ Learn More about Living Donation – National Kidney Donation Organization, https://www.nkdo.org/

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