Caregiving is a shared journey. Valen is joined by mother-daughter duo Linda and Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF) patient Claire Bevec, along with Valen’s husband Noah, to talk about the evolving dynamics of caregiving. Hear advice and strategies for navigating the caregiving journey and transition from pediatric to adult care with compassion and resilience.  About Your Host Valen Keefer – Patient Advocacy Leader, Health Educator, & Strategic Consultant, www.valenkeefer.com   Additional Resources ARPKD Facebook Support Group, https://m.facebook.com/groups/ARPKD/?ref=share&mibextid=wwXIfr Harmony for Hope, https://harmony4hope.org/  “Self Care While Being a Caregiver” – featuring Noah Keefer on Otsuka’s Patient Education Network, https://www.otsukapatiented.com/kidney-disease/community-stories/self-care-while-being-caregiver “The Crucial Care Partner” – Episode 5 of Letters of Hope, a docuseries on the trials and triumphs of transplantation, https://valenkeefer.com/letters-of-hope-docuseries  “Understanding ARPKD” – PKD Foundation, https://pkdcure.org/about-the-disease/arpkd/  “Welcome to Holland” – Emily Perl Kingsley, https://www.emilyperlkingsley.com/welcome-to-holland 

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