Advocacy starts with finding your voice. Valen and chronic rare disease patient advocate Swapna Kakani discuss how they discovered their purpose in patient advocacy and offer practical tips for anyone wanting to make a difference. Learn how to use your voice to drive change and support the rare disease community.  About Your Host Valen Keefer – Patient Advocacy Leader, Health Educator, & Strategic Consultant, www.valenkeefer.com   Additional Resources Swapna Kakani (@swapnaspeaks), https://www.instagram.com/swapnaspeaks  The Gutsy Perspective – Short Bowel Syndrome Quality of Life Research, https://www.thegutsyperspective.org/ Alabama Rare – Alabama rare disease policy advocacy network, www.alabamarare.org State Zebra Network – rare disease state policy advocacy network, www.zebranetwork.org Intestinal Rehab & Transplant Unwrapped – organization for supporting patients with intestinal failure, rehabilitation, and transplantation, www.transplantunwrapped.org 

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