13. When “Fed is Best”- Our Feeding Journey From Tube to Table

10/11/2025 22 min Temporada 1 Episodio 13
13. When “Fed is Best”- Our Feeding Journey From Tube to Table

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Episode Synopsis

In this personal episode, host Katelyn shares details about the feeding journey- from challenges to small wins with her daughter Goldie, who was born with congenital heart defects (CHDs). From navigating tube dependence to completing an intensive feeding therapy program, Katelyn opens up about one of the most isolating aspects of caring for a medically complex child. If you're a heart parent or anyone dealing with pediatric feeding challenges, this episode offers hope, practical insights, and the reminder that you're not alone through any of these isolating tasks you now assume as a medical parent. Katelyn discusses how the prenatal diagnosis shaped the feeding plans, especially having struggled through the societal demands of “breast is best” with her oldest daughter and talks through the evolution of Goldie’s feeding and nutrition journey– from tube to completing an intensive feeding therapy program that kick started the tube weaning process. She talks about setting appropriate expectations for yourself and your child, what false hopes she experienced throughout the beginning stages of a feeding tube, and how she shaped her perspectives and managed expectations along the way. Let’s Connect!Follow me on Instagram @tinylittleheartspodcastFollow me on Substack at Tiny Little Hearts SubstackThis episode was brought to you by the Pivot Ball Change Network.

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