In this conversation, Katelyn McMahan speaks with Allison Millar, a fellow heart mom, about her daughter Cora's journey with hypoplastic left heart syndrome (HLHS). Cora is now three and a half, and has undergone two surgeries. Allison and Katelyn discuss the challenges of navigating interstage care, the emotional weight of a prenatal diagnosis, and the importance of community support. Allison and her husband had to plan to deliver and relocate to a different state for Cora’s surgical care, and Allison shares the process of navigating those decisions, until she went into early term labor and the decision was made for her. Allison shares her family's advocacy efforts, including fundraising events to support other families affected by congenital heart disease and the significance of raising awareness for research and better outcomes. She shares about the annual bike ride her family started, along with the development of A Cure For Cora, to impact the advocacy and awareness efforts. Katelyn and Allison talk about how connection with other heart families can provide comfort and understanding, as it is often a very lonely journey at first. Every small win in a child’s health journey is significant, and the power of community support is invaluable. Use the code TINYLITTLEHEARTS for 10% off Better Days CoFollow Allison on Instagram about Cora’s StoryLearn more about Heart WorksLet’s Connect!Follow me on Instagram @tinylittleheartspodcastFollow me on Substack at Tiny Little Hearts SubstackThis episode was brought to you by the Pivot Ball Change Network.

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