Rare on Air

Por: EURORDIS
A EURORDIS-Rare Diseases Europe podcast on the experiences, challenges and successes of people living with rare diseases. Julien Poulain, Communications Manager at EURORDIS, meets with people who share their unique experiences of living with a rare disease, those who advocate for them, and experts on rare disease policy. Email the EURORDIS Rare on Air team at: [email protected].
58 episodios disponibles

Latest episodes of the podcast Rare on Air

Mostrando página 2 de 3

Rare Disease Day: Dani's story 20/11/2024
Miriam Wilms on navigating rare disease healthcare as both a mother and a specialist surgeon 31/10/2024
Zainab Alani on diagnostic delays, intersectionality, and educational gaps in rare disease medicine 26/09/2024
ERNs on Air: Putting Patient Journeys into Action 12/09/2024
Young advocate Jane Velkovski on accessibility and making a difference through football 25/07/2024
Marina Zapparoli Manzoni on the power of finding and building a community 27/06/2024
ERNs on Air: Simplifying access to cross-border healthcare - a Czech proposal 12/06/2024
Ayça Şahin's story and what our survey reveals about long diagnostic journeys 30/05/2024
Positively styling life with lymphedema: Nicole Faccio 30/04/2024
The impact of an ultra-rare condition: Fatal Familial Insomnia 28/03/2024
ERNs on Air: EURACAN Registry - Developing a long-term vision together 12/03/2024
Rare Disease Day: Leif's story 29/02/2024
It's Rare Disease Day 2024! 29/02/2024
Rare Disease Day: Natalia's story 22/02/2024
Rare Disease Day: Jay's story 15/02/2024
Rare Disease Day: Katie's story 08/02/2024
Rare Disease Day: Dan's story 01/02/2024
Mental wellbeing: Hands-on support for the community 31/01/2024
Rare Disease Day: Deeann's story 25/01/2024
Rare Disease Day: Bor's story 18/01/2024
« Primera ‹ Anterior 1 2 3 Siguiente › Última »
© 2003-2025 ZARZA | AHEAD OF OUR TIME
privacy policy
In God we trust In God we trust
PreSales Questions? Click Here
or call our toll-free line at +1-888-5002068 Miami, Florida, USA