Listen "Rare Disease Day: Dan's story"
Episode Synopsis
Join us on our 5th Rare On Air Stories for an incredible journey with Dan, a US Navy veteran and a 10-year hereditary colon cancer warrior.
Facing a rare gene mutation impacting less than 0.03% of the global population, Dan shares his resilient spirit and positive mindset throughout his battle. From a life-saving total-proctocolectomy surgery to meeting Dr. Henry T. Lynch, the pioneer of hereditary colon cancer research, Dan's story is one of faith, adaptation, and purpose.
Facing a rare gene mutation impacting less than 0.03% of the global population, Dan shares his resilient spirit and positive mindset throughout his battle. From a life-saving total-proctocolectomy surgery to meeting Dr. Henry T. Lynch, the pioneer of hereditary colon cancer research, Dan's story is one of faith, adaptation, and purpose.
More episodes of the podcast Rare on Air
Rare Disease Day: Christine's story
18/12/2025
Rare Disease Day: Annarita's story
04/12/2025
Rare Disease Day: Ahmed's story
20/11/2025
Tomasz Grybek on patient involvement and making lived experience count in regulatory decisions
03/07/2025
Rare Disease Day: Noah's story
26/02/2025
Rare Disease Day: Eden's story
19/02/2025
ZARZA We are Zarza, the prestigious firm behind major projects in information technology.