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Listen "Rare Disease Day: Katie's story"
Episode Synopsis
Meet Katie in our 6th episode of Rare on Air stories, diagnosed with CMTC at just 5 months old, she gracefully navigates life's challenges, embracing her rarity with pride. From temperature-induced swelling to laser surgeries, Katie shares her journey with courage.
School, sports, and passions—nothing held her back. Now 30, she advocates for herself and others.
School, sports, and passions—nothing held her back. Now 30, she advocates for herself and others.
More episodes of the podcast Rare on Air
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Rare Disease Day: Ahmed's story
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Tomasz Grybek on patient involvement and making lived experience count in regulatory decisions
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Rare Disease Day: Noah's story
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Rare Disease Day: Eden's story
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In God we trust