Listen "Rare Disease Day: Deeann's story"
Episode Synopsis
In our fourth episode we explore Deeann's unique journey, living with Nail Patella Syndrome, Idiopathic Intracranial Hypertension, Nervus Intermedius Neuralgia, Glossopharyngeal Neuralgia, and Trigeminal Neuralgia, alongside other rare conditions. As Deeann approaches the completion of her 5th university degree, she advocates for inclusion and diversity within the disability sector.🌍 Traveling through 29 countries, facing extended hospital stays, and managing persistent pain, Deeann's story reflects resilience in the context of these rare diseases.
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