Episode 3 – Ehlers-Danlos and rare art

Rare in Common: the podcast
28/02/2018 46 min
Episode 3 – Ehlers-Danlos and rare art

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Episode Synopsis

After years of misdiagnosis by physicians, Patty diagnosed her daughter’s Ehlers-Danlos syndrome through her own independent research. Since then, she’s worked tirelessly to advocate for the rare disease community, inspiring truly rare artwork along the way.

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Episode 26 – From diagnosis to network director—living with XLH 25/06/2020
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