Episode 23 – Breaking through with interactive education in rare disease

Rare in Common: the podcast
27/02/2020 24 min
Episode 23 – Breaking through with interactive education in rare disease

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Episode Synopsis

When it comes to understanding rare disease, education is the first step. In this installment of the American College of Medical Genetics and Genomics (ACMG) series, our guest is Debra Regier, the director of genetics education at Children’s National Medical Center in Washington, DC. Listen as she discusses her methods in making education more effective, as well as the importance of interactive learning in rare disease.

More episodes of the podcast Rare in Common: the podcast

Episode 29 – “It’s not going to control my life:” Adapting to life with LEMS 28/04/2022
Episode 28 – #RareDiseaseTruth: how a hashtag is changing the conversation this Rare Disease Day 25/02/2021
Episode 27 – “It’s working time”: building Sophie’s Neighborhood 30/07/2020
Episode 26 – From diagnosis to network director—living with XLH 25/06/2020
Episode 25 – What does COVID-19 mean for the rare disease community? 09/04/2020
Episode 24 – The promise of genetic testing in rare 26/03/2020
Episode 22 – Misdiagnosed: The importance of genetic testing 30/01/2020
Episode 21 – From broad questions to exact answers 19/12/2019
Episode 20 – Taking back life by tackling diagnosis 21/11/2019
Episode 19 — Exploring transgenics—the forefront of genetic advancement in rare 18/07/2019
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