Episode 26 – From diagnosis to network director—living with XLH

Rare in Common: the podcast
25/06/2020 30 min
Episode 26 – From diagnosis to network director—living with XLH

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Episode Synopsis

Diagnosed with X-linked hypophosphatemia (XLH), Susan has faced the challenges of living with this rare disease to become an advocate of the community and an influential force behind the XLH Network. The global community recently celebrated the second annual XLH Awareness Day on June 23, 2020.

This episode is brought to you by Ultragenyx.

More episodes of the podcast Rare in Common: the podcast

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Episode 28 – #RareDiseaseTruth: how a hashtag is changing the conversation this Rare Disease Day 25/02/2021
Episode 27 – “It’s working time”: building Sophie’s Neighborhood 30/07/2020
Episode 25 – What does COVID-19 mean for the rare disease community? 09/04/2020
Episode 24 – The promise of genetic testing in rare 26/03/2020
Episode 23 – Breaking through with interactive education in rare disease 27/02/2020
Episode 22 – Misdiagnosed: The importance of genetic testing 30/01/2020
Episode 21 – From broad questions to exact answers 19/12/2019
Episode 20 – Taking back life by tackling diagnosis 21/11/2019
Episode 19 — Exploring transgenics—the forefront of genetic advancement in rare 18/07/2019
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