Please note: This episode contains discussions of sensitive topics including death, diagnosis, and suicide. Listen with care.

This week, join host Tim Hollenback for an interview with Jim Chin, Board Chair. In addition to caring for a wife and son who lived with FSHD, Jim has served on the Board of Directors for 18 years. Knowledgeable about the history of the Society and every aspect of our work, Jim shares his years of experience with Tim before their conversation turns to a mutual love of coaching and baseball. As Tim said in the episode, he’s glad Jim could be on the podcast and wishes it could have been sooner. Don’t miss this episode with a powerhouse advocate of the FSHD community. 


No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone. 

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. 

If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media. 

Email: [email protected] 

You can find new episodes on YouTube and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode! 

Ver todos los episodios