Patients as Partners in Ultragenyx LC-FAOD Research

12/05/2021 40 min Episodio 24

                    Patients as Partners in Ultragenyx LC-FAOD Research

Listen " Patients as Partners in Ultragenyx LC-FAOD Research "

Episode Synopsis


Join Energy in Action host, Stephanie Tomlinson as she interviews Emil Kakkis and Jessica Riviere from Ultragenyx Pharmaceutical.
On this podcast, Ultragenyx will share how the company entered into LC-FAOD research, its research efforts, and how LC-FAOD patient voices and community engagement are central to the planning, implementation, and advancement of Ultragenyx research and programs. Ultragenyx is proud to partner with MitoAction to provide the LC-FAOD community with information and updates through a series of discussions on MitoAction’s Energy in Action podcast and Monthly Expert Webinar Series.
*This podcast episode is intended for U.S. members of the MitoAction community.*