Today I sat down to talk with Jenny, CTNNB1 mom of Miles. They were given the opportunity to build not only an accessible home for their son, but a forever home for themselves. I think this is incredible because I’ve recently learned, according to the CDC, 27% of Americans alone live with a disability, a majority requiring the use of a wheelchair or other mobility device. How amazing would it be to build a home where everyone is welcome? But where would you start? If you can’t build, could you add some accommodations? Jenny shares their building journey with us and gives many ideas and tips. Maybe someday you’ll have a similar opportunity, if so, after hearing from her you’ll know where to start. https://www.curectnnb1.org/#raredisease#syndrome

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