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Listen "NORD Breakthrough Summit Recap with Ashley Swift "
Episode Synopsis
Ashley Swift is the Chief Communications Officer for CTNNB1 Connect & Cure, as well as mom to dragonfly Evelyn. In October of 2024, Ashley was able to attend the National Organization for Rare Disorders (NORD) Breakthrough Summit in Washington, DC. She shared with me her experience at the conference, as well as the impact families make when they provide data for our Natural History Study. Home - NORD Rare Summithttps://www.curectnnb1.org/#raredisease#syndrome
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