Life with Multiple Diagnosis

CTNNB1 Connect and Cure
30/01/2025 48 min
Life with Multiple Diagnosis

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Episode Synopsis

So many of our kids have a common connection, CTNNB1, but many of our kids have more than just CTNNB1.  I interview Kelley Merwin about her son's multiple diagnosis and what she does for self-care.  Kelley talks about the process she went through to find her son's diagnosis and also how his other diagnosis have come into play with caring for her son.  Take a listen as Kelley shares the story of how she manages her son's needs and also her own.   https://www.curectnnb1.org/#raredisease#syndrome
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