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Listen "From DMD Diagnosis to Advocacy: How One Mother is Changing Lives | With Paula Naughton"
Episode Synopsis
Paula Naughton: Fighting DMD - A Mother’s Journey of Love, Loss & AdvocacyIn this powerful episode of The SuperPower Podcast, host Dr Gian Power OBE speaks with Paula Naughton, devoted mother, nurse, and tireless advocate, about the moment her world changed forever when all three of her sons were diagnosed with Duchenne Muscular Dystrophy (DMD), a rare and relentless genetic disorder.⚡️ The Shattering DiagnosisPaula shares the raw heartbreak of learning her boys faced a life with DMD and how that moment sparked a fierce determination to fight, not just for her family, but for all affected by this cruel disease.⚡️ Nursing Knowledge as a LifelineHer background as a nurse gave Paula unique insight and skills to navigate complex treatments and the healthcare maze, transforming overwhelming challenges into purposeful advocacy fuelled by empathy and expertise.⚡️ Creating a Beacon of Hope: The Join Our Boys TrustDriven by love and urgency, Paula founded The Join Our Boys Trust - a lifeline for families living with DMD, supporting research, care, and community. She reveals the trust’s impact in building solidarity and pushing toward a cure.⚡️ Strength, Resilience & Unwavering HopePaula’s story is one of emotional resilience - facing grief head-on and turning it into positive action. Her unwavering hope and commitment inspire all who hear it, proving how one person’s courage can change countless lives.Paula’s journey leaves us with a powerful question: How far would you go to fight for the people you love?Dive into more episodes and explore inspiring stories from incredible guests. Our podcast is all about discovering the unique superpowers that have shaped some of the most remarkable lives.Learn more about The SuperPower Podcast:https://gianpower.com/podcast/Follow your host, Dr Gian Power OBE:https://www.instagram.com/gianpowerhttps://www.linkedin.com/in/gianpower/Follow Paula & Join our Boys Insta logo - https://www.instagram.com/joinourboys_/?hl=enWebsite - https://joinourboys.org/Listen to The SuperPower Podcast on your preferred platform:Spotify: https://open.spotify.com/show/3Ex8g6sUy4njLKT6VC7KaC?si=be692ece97814f74&nd=1&dlsi=c29b6098f60b4735Apple: https://podcasts.apple.com/gb/podcast/the-superpower-podcast-with-gian-power/id1708573347Filmed at: Podshop StudiosMusic provided by: http://spoti.fi/NCSProduced by: Podshop
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