Rare but Resilient: How the Terlings Are Creating Change in the Rare Disease Community

23/04/2025 42 min Temporada 3

Listen "Rare but Resilient: How the Terlings Are Creating Change in the Rare Disease Community"

Episode Synopsis

This special episode of the Playeasy Warmup Podcast marks the launch of the Playeasy Purpose Project. To kick it off, Playeasy is proud to donate to the Austin 1st Foundation in support of their mission. In this episode, Kerri sits down with Anthony & Lindsey Terling to share the story behind the Austin 1st Foundation — a mission born from love, loss, & an unshakable drive to make a difference. After losing their son Austin to a rare genetic disease known as UBA-5, the Terlings turned their grief into purpose, founding an organization dedicated to raising awareness, funding research, & supporting families navigating the unknowns of rare diseases. They open up about their journey, the importance of building community around the cause, & how they continue to honor Austin’s legacy through hope, resilience, & action — including their upcoming fundraiser, the Aces Fore Austin golf tournament this May.Learn more about the Austin 1st Foundation: https://www.austin1stfoundation.org/Learn more about the Playeasy Purpose Project: https://go.playeasy.com/the-playeasy-purpose-projectLearn more about Aces Fore Austin: https://www.playeasy.com/events/b6c445eb-f245-49a6-a9f9-46179e62da7d

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