Wednesday, March 6, 2025 – Podcast 2

RARE DISEASE MONTH CERT1 STORIES – Thank you Javier, Willy T, Harris, Andrew, Emily Norah, Emily, Gideon.

See their stories on Facebook: https://www.facebook.com/lottieslight

See their stories on Instagram: https://www.instagram.com/lottieslightfoundation/

SHARE YOUR STORY: https://lottieslight.org/share/

REGISTER WITH OUR FOUNDATION (CERT1 FAMILY, FRIENDS, & SUPPORTERS): https://lottieslight.org/register/

VOLUNTEER YOUR TIME AND TALENTS: https://lottieslight.org/volunteer/

PODCAST PRODUCTION: Thank you Keylon Almond and Dana Wander

CONDOLENCES to the loved ones of Mary Lou Bobey, a great grandmother of one of our CERT1 kids. Thank you to those who donated to Lottie’s Light Foundation in her honor.

CONSORTIUM coming soon either My 2 or 3- Hear from the lead CerTra Syndrome (CERT1) researchers

SUMMER FUNDRAISER Cert1 Splash Dates and Details coming soon

NEWLY DIAGNOSED?

Resources for families here: https://lottieslight.org/newly-diagnosed/

Episode 2 of #TheCureCert1Podcast

#CureCERT1 #CERT1 #CerTraSyndrome #CureCerTra #LottiesLight #IlluminateACure #RareTogether #epilepsy #autism # intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #LottiesLightFoundation #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #COL4A3BP

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