SynGAP10 weekly 10 minute updates on SYNGAP1

SynGAP10 weekly 10 minute updates on SYNGAP1

Por: Syngap Research Fund, 501(c)(3)
Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
184 episodios disponibles

Latest episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1

Mostrando página 8 de 10

Special Double Episode: Understanding your particular variant and what to do about it (Hint: #iPSC) 27/01/2022
Stoke Therapeutics & Acadia Pharmaceuticals are working on SYNGAP1 #S10e43 14/01/2022
How to tell your family about SYNGAP1 07/01/2022
2021 by the numbers, 985 patients counted, exciting work ahead! 30/12/2021
Let’s catch the Genetic Therapy Tsunami for SYNGAP1! 17/12/2021
This is Real Life! Science is moving forward and we are on board 10/12/2021
Let’s make sure SYNGAP1 is cured in our lifetime. It’s up to us. 04/12/2021
Support SRF this GivingTuesday! With guest host, Caitlin Kaspar, Syngap sibling, nonprofit professional 26/11/2021
Grateful for the incredible SRF team/family... 19/11/2021
Our kids will live long lives and do beautiful things, let’s make sure we help them as much as possible. 12/11/2021
Multiple studies enrolling now, start with Ciitizen and keep going... 05/11/2021
Gather and connect. Learn from those who have come before. Keep hope alive! 29/10/2021
Gala. Webinar. Crypto SunBlocks. ICD 10 AND 11. Thank you. Sign up for Ciitizen by 11/15/21. 22/10/2021
Coming in hot!  BCH Grant putting Ciitizen to work & the Gala is next week! 15/10/2021
Inspiring your community and raising awareness for SYNGAP1 08/10/2021
F78.A1 is the ICD-10 code for 883 SynGAPians today! #UFDcure Cannonball in 5 days! Guest host, Ashley Frye 01/10/2021
Keep growing our community, we need each other! 24/09/2021
Rarebase explained and who is going to win the race, we don‘t care, we just need it fast. 17/09/2021
The future is coming, let’s build it! 10/09/2021
Hope is the smartest move! 03/09/2021
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