Listen "F78.A1 is the ICD-10 code for 883 SynGAPians today! #UFDcure Cannonball in 5 days! Guest host, Ashley Frye"
Episode Synopsis
- Go see the SRF TikTok account: syngap.fund/tiktok.
- Find us everywhere at our handle @curesyngap1.
- It's October 1! #SYNGAP1 ICD-10 code F78.A1 is live TODAY. Ask all your clinicians to start using it. syngap.fund/F78A1
- Cannonball 5 DAYS . 3 dads driving across the US syngap.fund/cball #UFDcure.
- Consider donating to our fundraiser for RareBase syngap.fund/RB.
- #SYNGAP Census! There are 883 diagnosed Syngapians worldwide. This is +75 in the last 3 months. Learn more at syngap.fund/census.
- Medical Considerations Guide is up! www.syngapresearchfund.org/families/doctors.
- Oct. 23rd is the gala & auction in NJ. Dr. Ben Prosser and co-founder Ashley Evans will be speaking. syngap.fund/gala
- October Newsletter: read it here: syngapresearchfund.org/news.
- Sign up for this 10 minute #podcast #SYNGAP10 here syngap.fund/10
This was Episode 29 of #Syngap10 - October 1st, 2021
#F78A1 #ICD10 #UFDcure #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
- Find us everywhere at our handle @curesyngap1.
- It's October 1! #SYNGAP1 ICD-10 code F78.A1 is live TODAY. Ask all your clinicians to start using it. syngap.fund/F78A1
- Cannonball 5 DAYS . 3 dads driving across the US syngap.fund/cball #UFDcure.
- Consider donating to our fundraiser for RareBase syngap.fund/RB.
- #SYNGAP Census! There are 883 diagnosed Syngapians worldwide. This is +75 in the last 3 months. Learn more at syngap.fund/census.
- Medical Considerations Guide is up! www.syngapresearchfund.org/families/doctors.
- Oct. 23rd is the gala & auction in NJ. Dr. Ben Prosser and co-founder Ashley Evans will be speaking. syngap.fund/gala
- October Newsletter: read it here: syngapresearchfund.org/news.
- Sign up for this 10 minute #podcast #SYNGAP10 here syngap.fund/10
This was Episode 29 of #Syngap10 - October 1st, 2021
#F78A1 #ICD10 #UFDcure #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
More episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1
F78.A1,the code for #SYNGAP1, turns 4, make sure we use it. #ICD10 for #RareDisease Update. #S10e185
30/09/2025
DSC - RDCRN - NCATS - NIH Press! #AAV in #Cell. SRF at CB. Scramble for SYNGAP1 next week! #S10e184
26/09/2025
You need a #CRID. SRF $1M to $CAMP noticed in Equity Research! #BeaconOfHope was great. #S10e183
26/09/2025
CURE SYNGAP1 joins biotech investors in CAMP4 Tx’s $100M Raise for ASO Program $CAMP #S10e182
10/09/2025
Why & How Do Patient Advocacy Groups Matter? Party Friday! #SYNGAP1Conf soon! #Elopement #S10e181
08/09/2025
#IEP: Syngapians don’t like the heat 🌡️ #BeaconOfHope #IEC2025 #CitizenHealth #DSC #CFC #S10e180
29/08/2025