SynGAP10 weekly 10 minute updates on SYNGAP1

SynGAP10 weekly 10 minute updates on SYNGAP1

Por: Syngap Research Fund, 501(c)(3)
Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
186 episodios disponibles

Latest episodes of the podcast SynGAP10 weekly 10 minute updates on SYNGAP1

Mostrando página 4 de 10

A patient dosed, new site, audited financials, conference reviews, EOY giving, two studies to join! - #S10e126 12/12/2023
ICD-11, SYNGAP1 Adult Paper & Study, AES, #SyngapConf, Frazier Eye Tracking Study - #S10e125 06/12/2023
Giving Tuesday, #SyngapConf, #FasterCures & Happy Thanksgiving - #S10e123 18/11/2023
The more we own our EEGs, the sooner we get a biomarker.  Simple. And remember to get Dinner tickets for the conference! - #S10e123 03/11/2023
Study Invitation - Everyone with a laptop can help us make an easy at home validated measure to de risk clinical trials.  Sign up now for this #SRFunded effort - #S10e122 #SRFFrazier 01/11/2023
SYNGAP1 Missense Variants: SRF Awards Turku $100,000 to Investigate Using Structural Bioinformatics - #S10e121 25/10/2023
Meetings Matter. Join this community at the #SyngapConf. The Gala was a hit (again). And our report from #PCEM2023. Vicky’s at #Bio - #S10e120 24/10/2023
“I’m afraid to Hope again…” & Melissa – Reflections on ENDD at CHOP, #UFDCure Cannonball, Scramble -  #S10e119 09/10/2023
#SyngapCensus, #UFDCure Cannonball, Scramble, PRAX-222 & ciitizen, and a #mustread — #S10e118 03/10/2023
Plan on #RDW now, it’s been a banner week for high quality SYNGAP1 info - Cannonball is next week! — #S10e117 29/09/2023
Getting ready for Global Genes, Cannonball Scramble Gala & the SYNGAP1 Conference — #S10e116 18/09/2023
Katrien Deckers reflects on European 🇪🇺 Epilepsy Conference - #S10e115 (Volume up) 17/09/2023
Naya, Pods, ILAE, Warriors, Talking to Pharma, Monica H. is doing Cannonball! Another week in Syngap-land — #S10e114 10/09/2023
Fondo sets the bar for LatAm Engagement, Samar’s interview, Andrade’s paper, the 2nd Soiree was a hit, grants are rolling in! — #S10e113 02/09/2023
Stanford Grant, CSC, UCSF Study, SYNGAP1 Case Report, Conference - #s10e112 18/08/2023
So much news, double catch up episode. #S10e111 12/08/2023
Adam’s Camp is amazing & so are compression vests #S10e110 30/07/2023
FAQs for SRF’s SYNGAP1 Conference 2023  #SYNGAP1 #SRFconference #Orlando  #S10e109 20/07/2023
Happy Birthday SRF! Five years of making the future better! #FasterCures #UCLA #EEG #S10e108 13/07/2023
Inspiring Events, Family Video & Important Studies. *Note the CINEMAS TRIAL for Epidiolex - #S10e107 14/06/2023
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