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Listen "Splash & #SYNGAPlove in 3 days, DSC & BCH Grants, more ICD attention! - Episode 15 of #Syngap10 - July 18th, 2021"
Episode Synopsis
#SPLASH4SYNGAP is on MONDAY.
3 days until June 21st!
Take photos with the flyer https://syngap.fund/love = https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap
Use hashtag #SYNGAPlove & #Splash4SYNGAP
DSC & BCH - It’s go time! Let’s raise some funds. Read the blogs
Syngap.fund/biomarker = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
Syngap.fund/BCH = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
ICD-10
EveryLife case study! https://everylifefoundation.org/icd-code-roadmap/#toggle-id-13
Dravet Business Cards. Copying is great! Copy us.
ONE YEAR SOONER: Reminder why all this matters https://www.syngapresearchfund.org/post/oneyearsooner
ORCA: Via CB we are in. Stay tuned here. SYNGAP1 is one of the validation teams
Rett Press Release https://www.prweb.com/releases/rett_syndrome_research_trust_announces_development_o[…]on_ability_of_individuals_with_rett_syndrome/prweb18012275.htm
DUKE FDA GRANT https://populationhealth.duke.edu/news/orca-measure-expands-more-neurodevelopmental-diseases
GRANDPARENTS group is going strong
Tell your parents about https://syngap.fund/grand = https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1
Also had the c.333del (6!) and regular wednesday bit.ly/SRFHH at 5 PM Pacific.
3 days until June 21st!
Take photos with the flyer https://syngap.fund/love = https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap
Use hashtag #SYNGAPlove & #Splash4SYNGAP
DSC & BCH - It’s go time! Let’s raise some funds. Read the blogs
Syngap.fund/biomarker = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
Syngap.fund/BCH = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
ICD-10
EveryLife case study! https://everylifefoundation.org/icd-code-roadmap/#toggle-id-13
Dravet Business Cards. Copying is great! Copy us.
ONE YEAR SOONER: Reminder why all this matters https://www.syngapresearchfund.org/post/oneyearsooner
ORCA: Via CB we are in. Stay tuned here. SYNGAP1 is one of the validation teams
Rett Press Release https://www.prweb.com/releases/rett_syndrome_research_trust_announces_development_o[…]on_ability_of_individuals_with_rett_syndrome/prweb18012275.htm
DUKE FDA GRANT https://populationhealth.duke.edu/news/orca-measure-expands-more-neurodevelopmental-diseases
GRANDPARENTS group is going strong
Tell your parents about https://syngap.fund/grand = https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1
Also had the c.333del (6!) and regular wednesday bit.ly/SRFHH at 5 PM Pacific.
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In God we trust