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Listen "Newsletter, SSB, Ciitizen growth, Frazier, Sprint, ICD-10 & you are not alone. - Episode 6 of #Syngap10 - April 16th, 2021"
Episode Synopsis
SYNGAP10 - Ep. 6 - 16 April 2021
SRF Newsletter yesterday, make sure you sign up!
SSB is off and running.
Webinars, another tomorrow in Spanish
Sprint next Saturday - April 24th
Celebrating Caren is now live and about to go on the circuit thanks Nancy, Daniel & illumina
SSB - Seizure sleep and behavior
Do the surveys! Links are in the newsletter and here:
syngap.fund/ssb-Behavior
syngap.fund/ssb-sleep
syngap.fund/ST
STXBP1 has joined ciitizen - Now they are joining SYNGAP1, FOXG1 Tess Research (slc13a5), Rett
SCN2A via Praxis, SCN8A & BPAN
Tom Frazier (Autism Speaks, CSO) has completed Phase 1 of NET, now working on the tool. He was just on the Today Show 2 weeks ago. - Here we are partnering with Malan, PTEN & ADNP.
Sprint4Syngap is going strong: $69k+! Way to go #TeamMyla!
FondoSyngap.org is live, great work Vicky & Marta!
We asked for an ICD10 code over a year ago - CDKL5, Dravet, Angleman's all have one, what's going on?
You’re not alone, reach out: [email protected]
SRF Newsletter yesterday, make sure you sign up!
SSB is off and running.
Webinars, another tomorrow in Spanish
Sprint next Saturday - April 24th
Celebrating Caren is now live and about to go on the circuit thanks Nancy, Daniel & illumina
SSB - Seizure sleep and behavior
Do the surveys! Links are in the newsletter and here:
syngap.fund/ssb-Behavior
syngap.fund/ssb-sleep
syngap.fund/ST
STXBP1 has joined ciitizen - Now they are joining SYNGAP1, FOXG1 Tess Research (slc13a5), Rett
SCN2A via Praxis, SCN8A & BPAN
Tom Frazier (Autism Speaks, CSO) has completed Phase 1 of NET, now working on the tool. He was just on the Today Show 2 weeks ago. - Here we are partnering with Malan, PTEN & ADNP.
Sprint4Syngap is going strong: $69k+! Way to go #TeamMyla!
FondoSyngap.org is live, great work Vicky & Marta!
We asked for an ICD10 code over a year ago - CDKL5, Dravet, Angleman's all have one, what's going on?
You’re not alone, reach out: [email protected]
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