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Listen "Adults, New parents, ABA, Misense and Money - Episode 9 of #Syngap10 - May 7th, 2021"
Episode Synopsis
In this episode, Mike reflected on a conversations with and questions from SYNGAP parents who have responded to previous episodes of SYNGAP10. As usual, it was packed.
Thanks to DISORDER for listing SYNGAP10 as one of the best Rare Disease podcasts. We are honored. https://www.rarediseasefilmfestival.com/rarediseasepodcasts
Reflections on conversation with parents, especially the parents of Adult SynGAPians.
We had a great webinar this week with Lori Unumb about ABA, Autism and Advocacy, you can view it on our webinars page https://www.syngapresearchfund.org/families/resources/webinars
Next week we will have a great webinar with Prof. Haas of UBC about missense mutations. Don't miss it. https://www.syngapresearchfund.org/webinars/functional-assessment-of-missense-variants-of-syngap1-kurt-haas
Ciitizen continues to grow, sign up at https://Ciitizen.com/SYNGAP1
Mike answered a great question about cost and access. Explaining why we are hopeful that payers will support our therapies.
Thanks to DISORDER for listing SYNGAP10 as one of the best Rare Disease podcasts. We are honored. https://www.rarediseasefilmfestival.com/rarediseasepodcasts
Reflections on conversation with parents, especially the parents of Adult SynGAPians.
We had a great webinar this week with Lori Unumb about ABA, Autism and Advocacy, you can view it on our webinars page https://www.syngapresearchfund.org/families/resources/webinars
Next week we will have a great webinar with Prof. Haas of UBC about missense mutations. Don't miss it. https://www.syngapresearchfund.org/webinars/functional-assessment-of-missense-variants-of-syngap1-kurt-haas
Ciitizen continues to grow, sign up at https://Ciitizen.com/SYNGAP1
Mike answered a great question about cost and access. Explaining why we are hopeful that payers will support our therapies.
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