Listen "Webinar: Usher syndrome mini-series - Part 1"
Episode Synopsis
This content was recorded during a Retina UK webinar on Tuesday 24 May 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK.
Retina UK are collaborating with Usher Kids UK and CureUsher to deliver a two part webinar mini series about Usher syndrome.
The first instalment will see us joined by a panel of sector experts, including Mr Rob Henderson (Moorfields Eye and Great Ormond Street Hospitals), Chloe Joyner (UsherKids UK), Kate Arkell (Retina UK) and Joanne Milne (CureUsher). We will be covering key questions and topic areas including what Usher syndrome is, how to get a diagnosis, both clinical and genetic, and what will happen after this, the importance of regular testing, how to interpret the genetic data and who can help you understand this and how you can connect with other support services.
The second instalment of the webinar series will be held on Wednesday 22 June at 7.00pm – more details to follow.
Retina UK are collaborating with Usher Kids UK and CureUsher to deliver a two part webinar mini series about Usher syndrome.
The first instalment will see us joined by a panel of sector experts, including Mr Rob Henderson (Moorfields Eye and Great Ormond Street Hospitals), Chloe Joyner (UsherKids UK), Kate Arkell (Retina UK) and Joanne Milne (CureUsher). We will be covering key questions and topic areas including what Usher syndrome is, how to get a diagnosis, both clinical and genetic, and what will happen after this, the importance of regular testing, how to interpret the genetic data and who can help you understand this and how you can connect with other support services.
The second instalment of the webinar series will be held on Wednesday 22 June at 7.00pm – more details to follow.
More episodes of the podcast Retina UK
E-Newsletter December 2025
11/12/2025
Look Forward - Winter 2025 (Issue 188)
19/11/2025
Retina UK Sight Loss Survey 2025
19/11/2025
The year ahead in fundraising with Retina UK
29/10/2025
E-Newsletter October 2025
24/10/2025
Annual Conference 2025 - Ask the expert
25/09/2025
ZARZA We are Zarza, the prestigious firm behind major projects in information technology.