Episode 1 – Hanging out with zebras

Rare in Common: the podcast
28/02/2018 38 min
Episode 1 – Hanging out with zebras

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Episode Synopsis

Those living with rare diseases refer to themselves as “zebras”. Janis is no exception. Her son Luke has a genetic mutation so rare it’s never been reported before. As her family works toward a diagnosis, she finds support among other zebras like her.

More episodes of the podcast Rare in Common: the podcast

Episode 29 – “It’s not going to control my life:” Adapting to life with LEMS 28/04/2022
Episode 28 – #RareDiseaseTruth: how a hashtag is changing the conversation this Rare Disease Day 25/02/2021
Episode 27 – “It’s working time”: building Sophie’s Neighborhood 30/07/2020
Episode 26 – From diagnosis to network director—living with XLH 25/06/2020
Episode 25 – What does COVID-19 mean for the rare disease community? 09/04/2020
Episode 24 – The promise of genetic testing in rare 26/03/2020
Episode 23 – Breaking through with interactive education in rare disease 27/02/2020
Episode 22 – Misdiagnosed: The importance of genetic testing 30/01/2020
Episode 21 – From broad questions to exact answers 19/12/2019
Episode 20 – Taking back life by tackling diagnosis 21/11/2019
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