Rare in Common: the podcast

Rare in Common: the podcast

Por: Cambridge BioMarketing
Rare in Common is a podcast about the unique stories of people affected by rare disease. Host Andra Stratton, a rare disease advocate, speaks with different members of the rare disease community, including patients, caregivers, healthcare professionals, and researchers. Join us as we tackle topics such as FDA approvals, national awareness campaigns, finding hope and support within the rare community, and the extraordinary challenges of living with a rare disease. Click. Listen. Feel.
29 episodios disponibles

Latest episodes of the podcast Rare in Common: the podcast

Episode 29 – “It’s not going to control my life:” Adapting to life with LEMS 28/04/2022
Episode 28 – #RareDiseaseTruth: how a hashtag is changing the conversation this Rare Disease Day 25/02/2021
Episode 27 – “It’s working time”: building Sophie’s Neighborhood 30/07/2020
Episode 26 – From diagnosis to network director—living with XLH 25/06/2020
Episode 25 – What does COVID-19 mean for the rare disease community? 09/04/2020
Episode 24 – The promise of genetic testing in rare 26/03/2020
Episode 23 – Breaking through with interactive education in rare disease 27/02/2020
Episode 22 – Misdiagnosed: The importance of genetic testing 30/01/2020
Episode 21 – From broad questions to exact answers 19/12/2019
Episode 20 – Taking back life by tackling diagnosis 21/11/2019
Episode 19 — Exploring transgenics—the forefront of genetic advancement in rare 18/07/2019
Episode 18 — Connecting the dots in the network of rare 20/06/2019
Episode 17 — The hope that comes with a name: the power of a diagnosis 23/05/2019
Episode 16 — Voices of ACMG: On the floor at the 2019 annual meeting 09/05/2019
Episode 15 — The A, T, G, and C’s of genes: exploring genetics with Dr. Anthony Gregg 25/04/2019
Episode 14 — “Beautifully heartbreaking”: one mom’s rare and incredible journey 28/03/2019
Episode 13 — Rare Disease Day: Looking back. Forging ahead 28/02/2019
Episode 12 — When all the stars align in the fight against ALL 24/01/2019
Episode 11 — “I got here because I asked for help”: coming together in rare 20/12/2018
Episode 10 — When a rare disease treatment fails approval, what happens next? 29/11/2018
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