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Rare Care Podcast

Rare Care Podcast

Por: Rare Disease Advisor

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

100 episodios disponibles

Latest episodes of the podcast Rare Care Podcast

Mostrando página 5 de 5

An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema 25/04/2024

An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema 25/04/2024

An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy 25/04/2024

An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association 15/04/2024

An Interview With Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, About Living With Spinal Muscular Atrophy 05/04/2024

An Interview With Seema Lalani, MD, Director of Project GIVE, a Pediatric Rare Disease Screening Program in the Rio Grande Valley of Texas 02/04/2024

An Interview With Matt Trudeau of ITF Therapeutics, on Givinostat as a Therapy for Duchenne Muscular Dystrophy 22/03/2024

An Interview With Thomas Holm Pedersen, PhD, Cofounder and CEO of Denmark's NMD Pharma 14/03/2024

An Interview With Courtney Silverthorn, PhD, Associate VP of Science Partnerships at the Foundation for the National Institutes of Health 06/03/2024

An Interview With Cristol Barrett O'Loughlin, CEO of Raregivers 28/02/2024

An Interview With Omar Kamlin, MD, Senior Medical Director at Orphalan 23/02/2024

An Interview With Melinda Bachini, Chief Patient Officer at the Cholangiocarcinoma Foundation 02/02/2024

An Interview With Kyle Bryant, Director of the Ambassador Program at the Friedreich's Ataxia Research Alliance 22/01/2024

An Interview With Paul Bolno, MD, CEO of Wave Life Sciences 04/01/2024

An Interview With Chris Peetz, CEO of Mirum Pharmaceuticals 27/12/2023

An Interview With Thierry VandenDriessche, PhD, of the European Society of Gene & Cell Therapy 14/12/2023

An Interview With Brian O'Mahony, CEO of the Irish Haemophilia Society 14/12/2023

An Interview With Selene Capodarca, Global Study Coordinator for HD-Enroll 07/12/2023

An Interview With Professor Claire Booth, Cofounder of the AGORA Initiative 05/12/2023

An Interview With Dr. Paul Bolno, CEO of Wave Life Sciences 21/11/2023

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