On this episode, we speak to Avishek Pal about how patients can better access and contribute to medical publications.In parallel to his day job as Global Medical Director of Cell & Gene Therapy at Novartis, Avishek is affiliated with the Institute for Biomedical Ethics at University of Basel, investigating how medical research information in plain language may improve health literacy and autonomy in patients with chronic diseases.Join us as we discuss how patients seek medical information, the role of generative AI, and initiatives fostering better patient access and involvement in medical literature.Chapters:0:00 - Introductions1:48 - Patients' information-seeking patterns4:38 - Role of health literacy6:21 - Importance of accessing medical literature8:44 - Information overload & reliability15:24 - Plain-language summaries26:43 - Publication bias in medical research30:54 - AI for medical information39:25 - Patients as authors49:53 - Future of medical publications53:15 - Advice for different stakeholders56:44 - Reflections with Caitlin & ClarindaResources and abbreviations:Cochrane LibraryPubmedGoogle ScholarCF - cystic fibrosis Avishek’s landscape analysis paper on plain-language resourcesFuture Science Group, now a part of Taylor & FrancisBecaris PublishingEnvision GroupA&E - accident and emergencyCF Trust - Cystic Fibrosis Trust NHS - National Health Service, UKCDC - US Centres for Disease Control and PreventionNIH - National Institutes of Health, USFDA - US Food & Drug AdministrationEMA - European Medicines Agency Chat-GPTAvishek's paper on ethical considerations for plain-language materialsEUPATI - European Patients’ Academy on Therapeutic InnovationPIF TICKDiscernICMJE (International Committee of Medical Journal Editors) authorship criteriaClarinda’s Patient Perspective paperCoalition SHave feedback or suggestions for us? We'd love to hear from you!Website: notjustpatients.comLinkedIn: Not Just PatientsEmail: [email protected]

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